An update was issued by the Department of Health and Social Care on 9th May 2024 regarding the ongoing supply issues of pancreatic enzymes e.g. Creon, Nutrizym. To summarise the statement:
1. Supplies of Creon 10,000 and Creon 25,000 are in limited supply until 2026
2. Nutrizym 22 is out of stock until mid August 2024
3. Pancrex V capsules and powder are available but unable to support the increase in demand
We are aware that many of you are experiencing difficulty obtaining a supply of your usual pancreatic enzymes from your community pharmacy. The hospital pharmacy is also experiencing supply issues and we are only able to supply a prescription of pancreatic enzymes per for those patients unable to obtain a supply from pharmacies in their local area.
If you are struggling to obtain a supply of pancreatic enzymes, we advise you to do the following ;
1. Contact alternative pharmacies in your area to fulfil your prescription as some pharmacies may be able to obtain a supply for you. It may be worth trying different companies as these may use different medication suppliers and you may need to take an alternative to your usual preparation.
Viatris, the distributer of Creon has initiated a Creon consumer helpline for patients. The purpose of this service is to provide up to date information on Creon supplies and the pharmacies that have recently received a supply in your postcode area. Their free helpline phone number is 0800 8086410, opening times Monday - Friday, 9am to 5pm.
2. If your pharmacy require a new prescription to supply you with an alternative preparation, please request this from your GP. We have written to all GP's to request all preparations of pancreatic enzymes are available to patients on prescription.
3. If the above steps are unsuccessful, contact the CF Pharmacist or CF Dietitians who will be able to arrange an outpatient prescription for you to collect from the hospital. Outpatient pharmacy opening times are here.
4. If you experience any symptoms of malabsorption such as fatty stools, abdominal pain, bloating or other bowel symptoms, with an alternative preparation - contact the CF team for further advice.
6. Find out here what to eat if you have a limited supply or run out of pancreatic enzymes