Research trials we are currently recruiting to and other research opportunities
Research opportunities can be discovered via the CTAP Trials Tracker. Here are a few of the studies we are recruiting to:
Join our Team
The More Life with CF Study
Help us to design a weight management programme for people with CF by people with CF.
Find out more from Carly and Jo
Alternatively, shape the development by telling us what you think about the programme prototype
We are inviting people living with CF to review our CF weight managament programme as it is developed.
We want to know what you think about the content, if it engages you, if the messages are communicated in a way that is meaningful and motivating to you.Your opinions will shape how we develop the programme.What would you need to do ? take part in a short online or in person interview where you will take a look at the programme and tell us what you think, simple as that.
Download our participant information sheet to find out more here or contact Jo Barrett, joanne.barrett2@nhs.uk or phone/text 07867 143787
If you would like to find out more or if you are interested in taking part, please contact Jo Barrett, CF Dietitian by phone or text on 07867 143787 or email joanne.barrett2@nhs.net
More Research Opportunities
CLEAR Study - is the second joint research study looking at new treatments for both Cystic Fibrosis (CF) and Non‑CF Bronchiectasis (NCFBE). This means it includes adults who have bronchiectasis for any reason, not only those with CF.What the study is testing : It is testing how well a new treatment works and how safe it is. The treatment being studied is a bispecific antibody. This is a type of laboratory‑made protein designed to recognise and bind to two different parts of the Pseudomonas aeruginosa bacteria at the same time. The idea is that by attaching to the bacteria in two places, the treatment may: help the immune system clear Pseudomonas more effectively, reduce bacterial load in the lungs, lower the risk and frequency of chest exacerbations.
How the treatment is given: the medication is an intravenous (IV) infusion, given once every 4 weeks.Each infusion is done in clinic during a study visit.Who can take part:be adults with CF or any cause of bronchiectasis, and have a positive sputum culture for Pseudomonas aeruginosa at screening.Study length and number of visits: a minimum of 9 visits over at least 24 weeks (just over 6 months).Additional follow-up may take it to 28+ weeks.Expenses (travel etc.) and an inconvenience fee are provided. To enquire about taking part in this study, please contact a member of the team.
Airtivity trial-We are seeking volunteers for the trial of a new anti-inflammatory treatment. A similar treatment has been found to be successful in reducing respiratory exacerbations (chest infections) in other lung conditions. The aim of the study is to see if this medication reduces how often people with CF have a chest infection. The study involves 10 visits to Heartlands Hospital every 8 weeks for up to 80 weeks. Participants will be reimbursed for their time and travel expenses. To enquire about taking part in this study, please contact a member of the team.
MED-CF study - Veronica Lynch, CF Dietitian and research fellow is recruiting people living with CF to take part in an online or telephone interview about dietary management of CF. You can register your interest here or contact Veronica by phone 07503 926653 or email medcfstudy@gmail.com
Grampus-CF. A study to explore 'cluster' of gut symptoms in CF to see if they have common causes. You can take part via the Trialmotif app, find out more here.
Patient and Public Involvement Opportunity
Jane and Carly are Lead Partners for the More Life with CF Research Study
As lead partners, Jane and Carly have lived experience of cystic fibrosis. They are working closely with the lead researcher (Jo Barrett) in planning and co-ordinating all patient and public involvement activities for this research study. This includes planning our patient advisory group meetings, CF community involvement, and leading our patient advisory group. The More Life with CF Patient Advisory Group make shared decisions with the research team and provide feedback on how the research is carried out and communicated to the CF community.
Read about Jane and Carly's journey living with cystic fibrosis and why they decided to become Lead Partners for this study
Fancy a chat with Carly and Jane? We hold regular online informal meetings to chat about life with CF. Contact Jo Barrett for the link to our next meeting - joanne.barrett2@nhs.net
If you have cystic fibrosis or care for someone who has cystic fibrosis and would like to join our patient advisory group, please email Jo Barrett CF Dietitian and researcher - Joanne.barrett2@nhs.net or text 07867 143787 for more information.
What's your story ? Ever wanted to tell your story in a way that's meaningful to you ? Take part in a creative research project, gathering personal stories around reproductive choices. Find out more here and how you can be involved.
If you are interested in participating in either of these studies or have any questions about clinical research, please get in touch with our CTAP coordinator or speak to a member of the CF Team