CF Trust Youth Advisory group Project

12th March 2026

Cystic Fibrosis Trust's Youth Advisory Group (YAG) are making a book of stories, opinions, questions, interviews and other bits and bobs for young people aged 16+ with cystic fibrosis and want your help.

YAG are a group of young people with CF or siblings with CF (aged 14–25).

It’ll include personal stories about things like medical rights, relationships, nights out and independence, plus lighter features on travel ideas and recipes. We’d love to hear from you with:

An embarrassing story - something that felt awful at the time but is funny to look back on & ideally something you feel like you’ve learned some lessons from. It can be CF-related if you like, but it doesn’t have to be (because of course, being a young person with CF doesn’t mean it has to define you, which we’re also keen to express here).

A question you’d want to ask another young person with CF - whether that’s on life with CF, friendships or maybe just around confidence and navigating life, the ball is in your court! We’ll include some of your questions in an “agony aunt” section where a young person with CF will share their thoughts and advice.

If you're a young person aged 16+ with CF we want to hear from you. This’ll help us to make it all more interesting, diverse and exciting. We won’t publish your name, so your story or question will be kept completely anonymous. We might not be able to use everything you send in for the book – it depends on how many of you respond! The Trust might ask you if they can use what you send in for something else, like a blog or social media post, but don’t worry, they’ll make sure they get your permission first. Please send these to us by 24th March, by email to:  cfyouth@cysticfibrosis.org.uk