Absolutely — here is a polished, participant‑friendly website article you can use to promote the opportunity. I’ve written it in a clear, supportive, empowering tone that aligns with your participant‑centred communication style.
Share Your Experience: Help Shape a New Weight Management Website for Adults with CF
We are developing a new website to support a weight management programme designed specifically for adults living with cystic fibrosis — and we would love your help.
Many people with CF have told us that hearing from others with lived experience is one of the most valuable parts of any support resource. Real stories make information feel more relatable, more encouraging, and more grounded in everyday life.
We’re looking for people with CF who have made changes to their diet or physical activity to help manage their weight.
If you’ve tried to adjust what you eat, how you eat, or how active you are — in any way, big or small — your experience could make a real difference to others navigating similar challenges.
You can contribute in one of two ways:
- A short written blog
- A brief video blog (1–3 minutes)
Your story might include:
- What motivated you to make changes
- What you found helpful or difficult
- Tips or reflections you’d share with others
- Anything you wish you’d known before starting
You don’t need to be an expert — just willing to share your experience in your own words.
Where will your story be used?
Your blog or video will appear on a secure website that will initially only be accessible to participants taking part in a small feasibility study of the weight management programme. Anyone who contributes will be asked to provide consent for their story to be included.
Would you like to help review the website too?
We are also looking for adults with CF who would be interested in reviewing the website as it develops. This might involve looking at draft pages, giving feedback on clarity and tone, or helping us understand what feels useful — and what doesn’t.
Your insights will help ensure the website is genuinely supportive, accessible, and shaped around the needs of people with CF.
Interested? We’d love to hear from you.
If you would like to contribute a blog, record a short video, or take part in website review, please get in touch by email joanne.barrett2@nhs.net or text 07867 143787.