Cystic Fibrosis Trust Adult Patient Experience(PREMs) Survey

28th January 2021

As part of our efforts to understand how our patients feel about changes in CF care we have implemented since the start of the pandemic, we are participating in the Cystic Fibrosis Trust’s Adult Patient Reported Experience (PREMs) survey.

Open until 31st March 2021, it gives you the chance to tell us how you feel about areas of your care such as video consultations, access to airway clearance equipment and inpatient care, amongst others.

To access the survey please click directly on the links below:




If you would like a paper version of the survey, or someone to go through it in English, then please call or email the

Quality Improvement team at or 020 3795 2162.

We will receive a centre report showing our results compared to UK averages and any respondents who have chosen to provide their e-mail address to the Trust will also be sent a copy of the centre report by e-mail.

Please consider taking part in this important initiative to help us identify the aspects of your CF care you value most and potential areas for improvement.