Services
At the West Midlands Adult Cystic Fibrosis Centre we have a team of healthcare professionals which includes consultants, registrars, physiotherapists, dietitians, social worker, psychologist and specialist nurses. All the team provide inpatient and outpatient care for adults over the age of 16 who have CF.
Many people find it helpful to come and look around the centre and meet the team before transferring. This visit will provide you with the opportunity to ask any questions or discuss concerns that you may have before you transfer. If you feel you would like to do this contact the C.F nurses at the Children's hospital and they will be able to arrange this for you. Alternatively we could show you around the ward and introduce you to some of the staff when you attend your first outpatient appointment. You are also welcome to call and discuss any issues you may have by phoning the numbers of the C.F team provided.
Outpatients
What should I expect when I go to the outpatient clinic?
The CF clinics are held in the outpatient department of the Adult CF centre which is based ward 26. On arrival at the clinic you will need to book in at the reception desk. In order to keep our records up to date please inform the receptionist of any change of address, telephone numbers and next of kin. This is important information for us to have if we need to contact you.
You will then be allocated a clinic room where the nurse will come and see you to measure your height, weight and oxygen saturation levels. Whilst in the privacy of this room spirometry (blowing tests) and sputum specimens will also be obtained. You will then be asked to remain in this room for the duration of your visit. The CF team i.e. specialist nurse, dietician, physiotherapist, social worker and doctor will come and review you in this room.
The first time you attend the outpatient clinic you may be here for a couple of hours. This is in order to allow the time for the consultant and CF team to assess you and go through your current treatments. The doctor may also want to organise some routine investigations such as an x-ray and blood test.
When you have finished in clinic please hand your appointment slip to the receptionist. A follow on appointment will then be sent to you by post.
|
Day |
AM/PM | Week | Clinic |
| Monday | PM | 1 2 3 4 |
Non pseudomonas CF pseudomonas CF pseudomonas CF pseudomonas |
| Tuesday | AM | 1 2 3 4 |
CF pseudomonas CF pseudomonas CF pseudomonas CF pseudomonas |
| Thursday | PM | 1 2 3 4 |
Joint diabetic/CF pseudo CF pseudomonas CF pseudomonas CF pseudomonas |
| Friday | AM | 1 2 3 4 |
Cepacia CF CF pseudo (Registrar only) CF pseudomonas CF pseudo (Registrar only) |
Other clinics held:- Monday and Wednesday morning Annual Review (weekly), Tuesday pm Transition (as arranged), Thursday pm Diabetic Nurse led (as arranged),
Joint Obstetric (monthly)
Coventry Satelite Clinic (monthly)
Appointments in the Adult CF Centre
It is important to arrive for your appointment on time unless there is an unavoidable delay. Please telephone clinic reception on 0121 424 1693 if this happens to let us know as we do realise that many of our patients travel quite a distance. Patients will be seen by order of appointment time and not arrival time.
How do I re-arrange or cancel my appointment?
Please remember to telephone and let us know if you are unable to attend your hospital appointment, as clinics can be quite full and therefore another patient would be able to use your clinic slot.
To cancel an appointment/re-arrange an appointment please contact Joanne Watson - Clinic Receptionist on 0121 424 1693. Alternatively you can e-mail us on:- cancel.opd@heartofengland.nhs.uk
Admission to Hospital
Sometimes you will need to be admitted to hospital so that you can have some help receiving your treatment. When a date of admission has been agreed, the ward will contact you between 09.00 - 13.00 on that day for bed availability and time.
What ward will I be admitted to?
You will be admitted to Ward 26. This is a purpose built ward for adults with cystic fibrosis. It consists of 20 single rooms, all with en suite facilities.
What do I need to bring in from home?
The usual everyday clothes/nightwear
Toiletries
Insulin pens and pen needles
Insulin
Blood sugar monitors and blood testing strips
Air compressor and pots
All nebulised medication including Dnase and Tobi
Any airway clearance equipment egg flutter
Extension sets for gastrostomy button
What are the visiting times?
Visiting times on Ward 26 are 10.00am - 21.00pm.
Permission for children to visit must be gained from the nurse in charge prior to visiting.
Can my visitors stay overnight?
Family or friends are allowed to stay overnight in special circumstances only. This must be discussed with the nurse in charge. If permission is given for family or friends to stay overnight a relative's room is available on Ward 26.
When will I see the doctors?
There is a consultant ward round every Monday and Thursday morning. You will also be reviewed on Tuesday, Wednesday and Friday by a CF registrar.
What is available to me during my admission?
A laptop computer with internet access and TV channels
Your own fridge
Free parking for yourself and one relative.There is a newsagent, cash machine, Boots Chemist and café in the main entrance of the hospital.
Am I allowed to use my mobile phone?
The use of mobile phones is allowed in patient rooms. However, they should not be used during treatment times and ward rounds.
What food is available on the ward?
We provide a dedicated menu for inpatients on ward 26 in addition to the hospital menu. Our ‘Lite Bites' menu included options such as cooked breakfasts, toasted sandwiches, pizza, pasta, jacket potatoes, curries and a range of desserts . It is available anytime during the day when a housekeeper is on duty (usually 7am - 6pm). If you have any special dietary requests, please discuss this with your Dietitian and we will try our best to accommodate your needs.
The meal times are as follows - breakfast 08.00 - 10.00, lunch 13.00 and evening meal 18.00. Snack and drinks (tea, coffee, hot chocolate, milky drinks and smoothies) are available throughout the day. We can also provide you with a flask of hot water, tea, coffee and hot chocolate for you to make your own drinks in your room.
Can I bring my own food into hospital?
All inpatient rooms are equipped with a small fridge which can be used for storing your own food and drink items that you may wish to have brought in from home. Please read the ward food policy to find out what type of foods can be brought in .
The hospital food policy does not allow food brought in from home to be heated or cooked on the ward.
Can I leave the ward?
If you wish to leave the ward, it is essential for safety reasons to ask the nurse in charge, informing them of where you are going and at what time you expect to return. If you are going out for the evening you need to return to the ward by 10.30pm and be in your own room by 11.00pm. This is to enable night medication to be administered in accordance with hospital policy and allow time for you to settle before the ward lights are turned out.
Am I allowed to have contact with other CF patients?
You are encouraged not to have contact with other CF patients in clinic, in hospital or socially. If you do, you can potentially put yourself at risk of acquiring new infections as well as putting others at risk of acquiring your infection. This may cause your health to deteriorate.
