Our website has details of our CF Centre's facilities and clinics, outpatient and in-patient information, patient stories and factsheets to download. An invaluable resource for all our patients and their relatives, or for anyone simply interested in our CF Centre or wishing to donate to it.
Planning a Holiday ?
The current spell of changeable weather may have resulted in many patients thinking about getting away for a short break or holiday. Many of you may be looking forward to an escape which was planned earlier in the year. Either way, there is always a lot to think about when travelling in the UK or venturing abroad. The check list below has been put together to hopefully make any plans that little bit easier.
Make sure your CF consultant, along with any other consultant you might see, confirms that you are fit to travel.
Arrange a clinic appointment 4 weeks prior to going on holiday as you may need a course of IV antibiotics before you go.
If you require oxygen for a holiday in the UK, contact your oxygen provider and they will arrange this for you. If you are going abroad your oxygen provider will give you the relevant contact telephone numbers so that you can arrange this yourself. There may be a charge incurred.
Make sure you have details of the nearest hospital to where you are staying.
It is advisable to have a travel letter if you are taking medications or a nebuliser through customs, please let Elaine Chapman CF centre Manager know at least 2 weeks before you go and she will be more than happy to provide you with one.
Never book anything without having first secured a travel insurance policy for pre-existing medical conditions. Many standard policies will not cover the support needed for CF or Transplant patients should anything go wrong.
Do your homework. Good deals vary from month to month but if you make a few phone calls or search online, there will be something out there which meets your needs.
Make sure you have a copy of any policy in your travel documents. Many companies send a policy number by email these days - be sure to print out the complete policy and booklet if available.
Be honest and declare everything.
Make sure you take more than you need - If possible take an extra weeks worth.
Store all medication in your hand luggage whenever possible. You can stay on holiday if your clothes get mislaid, but it's a quick flight home without your tablets.
If taking insulin be sure to store it properly, especially if flying - More details available from Kirpal 0121 424 3577 or refer to information leaflet on ‘CF diabetes and travel' available in information downloads.
If taking a nebuliser make sure you know the voltage abroad. Many high street shops sell adaptors.
Remember to add salt tablets and sun cream to your daily medication regime.
You will need to apply sun block if you taking ciprofloxacin or doxycycline to prevent sunburn on these medications.
Airport security is much improved these days, especially when travelling to places like the USA. Therefore it is a good idea to keep all medications in their original packaging.
If having to use oxygen whilst flying, make sure the airline knows your requirements. There may be a charge incurred. Read the CF Trust's advice on oxygen whilst flying.
Get your ‘Fit -to Fly' letter from Elaine. This will list your medications along with stating that you are indeed....Fit-to Fly! Contact Elaine 0121 424 2261.
Documents Check list
ESTA authorisation (USA)
European Health Insurance Card (EHIC)
Travel insurance documents
Fit-to Fly letter
Any email correspondence for bookings, flights etc
Emergency telephone numbers, eg Family, doctors, hospital etc.
If you have any concerns about travelling make sure you speak to any member of the CF Team well in advance of committing to any plans and be sure to look at our Holiday/ Travel articles elsewhere on the website. Click here for more info
Most importantly........have a great time!
Get involved!....Remember...your website needs you!
This is YOUR website! It's been created with the help of patients here so if there's anything that YOU would like to see in it, any ideas about how to improve it, please let us know. YOUR comments and suggestions are most welcome - the more patient input, the better it will be!
We're really keen to get even more of you to contribute, so please keep sending us your stories, photos and videos of special events, celebrations and holidays. Contributions to our newsletter, would also be most welcome! It's produced twice a year - if you've anything that you'd like to have included, please let us know.
We're also looking for a group of patients to take part in a focus group to discuss developing a new information pack for to help younger patients through their transition from paediatric to adult CF care. In addition, we would welcome your views on the clinic touchscreen. It's an interactive information point - you may or may not have noticed it in the corner of clinic! We'd like to find out what information you would find helpful to include on it.